The Waiting Game

Since nerves regenerate about 1mm a month waiting to see progress is the most frustrating part about the whole process. Everyday we continued to do our exercises at every diaper change. I did it for my daughter, but I HATED it. I shouldn't have to be doing this.... Is what I thought to myself every time! I knew they were important so even if she screamed we were pretty religious about doing them! 

Here is a link to what we did 

https://m.youtube.com/watch?v=U4aOr1CXAGQ

I tried to mix it up by singing songs and moving her arms together to itsy bitsy spider, twinkle twinkle, old McDonald, etc. it seemed to break up the manaughtny of our plain old exercises. 

Like I said, waiting was the hard part.....

I would swear she moved or twitched when I'm sure nothing was happening. I figured it couldn't hurt to be optimistic! 

After each appointment it was like "Each child is so different. We just have to wait and see." Gosh I HATED that statement! Hated! Hated! Hated! Especially since I was soooo impatient!!!! I just wanted her to be better. Seeing her arm hang there broke my heart! 

It wasn't until right before Christmas 2013 that I saw some functional movement. I even recorded it to show my husband and specialists to prove I wasn't crazy and losing my mind just in case she didn't do it again. Even the littlest improvements we celebrated!!!! And we waited ..... Hoping for more....